The Loneliness of Life with Myasthenia Gravis

Life with an invisible illness like generalized myasthenia gravis (MG) can be lonely, in part because it is so difficult for others to understand the experiences and symptoms that someone with myasthenia gravis is going through. As Tiffany shares, “How do you explain to someone that one day you can wake up and not be able to walk but the next day be completely fine?”

Tiffany was diagnosed in her twenties with myasthenia gravis, a rare autoimmune disease that impacts the neuromuscular system. Her MG symptoms included losing the ability to smile, muscle weakness, and trouble walking. Her MG journey is one of denial, loneliness and isolation, but also of determination, resilience and the support of loving friends and family. 

Watch to learn more about Tiffany’s inspiring story of life with this rare, autoimmune disease.

Want to hear from more people living with generalized Myasthenia Gravis about their experiences? Meet Meridith, Jeri, Bryan, SeAndrea, Jessica, Thomas, and Kim.